Monday, January 31, 2011
Did not see it coming?
Having a good chat to someone the other day and, after a few tots of vino, I hear "your a con artist". I was not sure at that point how it was related, so I just resumed the conversation, not sure if it was a conversation any longer, more like words just falling from the gaping hole in my face. A sentence later and I hear again "your a con artist", now I know this person is serious, I sober up suddenly and ask what it actually meant? I was told I was a con artist because I made claims about my disease and the prognosis which are clearly baseless. I ask why they feel this way and I am told it is because I look too well for someone who has a disease with such a poor prognosis. I was never very quick with responses and it usually takes me a day or two to work out what I should have said, which is useless by then. I was pretty cool though considering and like a ferret tried to quickly ascertain what the motive was for the comment and if perhaps I had misinterpreted it. It turns out I was not confused at all and the comment was as serious as a firing squad. It turns out that the disease could all be just a matter of mind 'over matter', all in my head so to speak. I was told that I like to pretend to be sick and do the whole act so well. Last month when I was not feeling too well I battled and complained as men usually do and was told that I moan too much, turned out I had gastritis which had to be treated and after taking the medication I immediately felt a lot better and was back to my normal self. I tried to explain that my approach to the disease is to accept the information to be as true and correct as it is intended for treatment or assistance but not for the purposes of morbidity. I try to continue with my work and as much activity as I can, physically and mentally. I eat as well as I can afford, meditate, and try to find some peace in my art and photography. The assault continued to a point where I was asked to produce a letter from from my specialist that clearly proves or indicates that I was dying from this disease. I humbly had to decline because I had no such letter in my possession, but did offer to introduce other evidence to prove my innocence, which was an envelope filled with my HRCT scans as well as x-rays, lung functions, doctors reports and pathology reports. These are now being sent to their own GP for further investigation regarding my claims. So now I will wait for the Doctors findings. I was asked what I would do if it was discovered that I do not have Usual Interstitial Pneumonia, and that it is actually just all in my mind? My response was that I would be eternally great full and ecstatic to hear such news. I was then asked what I would do if it was discovered that I was wrong about my condition and they were right? .............I did not have an answer for that, as I had never thought of it like that ever....a 'wrong' or 'right'? I have been thinking about this a lot now because I had to try and work out what the motivation was. It would seem that if the disease did not start with the letter 'C' or did not get as much exposure as 'Aids' or if I was not deformed, bleeding, handicapped or broken in some grotesque way, it is not conceivable to accept that it would be too serious and perhaps some simple alternative remedy like sticking a pealed carrot up my ass for week would cure it. (I joke.....) How do sufferers of this degenerative, progressive disease deal with the emotional and mental side affects? I have no explanation as to why this person feels that I have conned them? I have no clue as to what the motive is for saying something like that? What I have realised though is that if the Doctor said you are going to die from a particular disease, then you had better get on with it otherwise you are going to embarrass and inconvenience a lot of people out there. Don't think you can just get better and get away with it. (OK, ok I joke again, but what else am I supposed to do with this strange information)
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What I can't believe, Doug, is that you give this twit any thought at all! Who cares what the motive? Clearly someone in denial, immature and unable to deal with your reality. Your disease may not be in the mind but your treatment is and THAT alone is why you looked so healthy to him/her. Nothing like gritty reality to bring out people's true colours hey? Love you, admire you, respect you... keep walking xxx
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